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When you don’t know what to say
People often wonder what they should say to a person who is dying.
It is understandable that you might feel confused. What you feel might be so complex that it is hard to find the right words, or any words at all.
It is natural to worry about saying the wrong thing. You may want to offer something that will help them cope but don’t know what that is. It is usually better to say something than to pretend nothing is wrong.
Most times, someone who is dying will find comfort in you being there, and appreciate knowing that family and friends are thinking of them. Even if you feel you’re not doing anything, just being there sends the message that you care.
In her book The Etiquette of Illness, Susan Halpern suggests asking, “Do you want to talk about how you’re feeling?” rather than “How are you feeling?” This approach is gentle and less intrusive. It also gives the person the choice to respond or to say no.
Ways to talk with someone who is dying
- Listen to what the person who is dying tells you. They may want to talk about dying, their fears or plans. Try not to prompt an answer that confirms what you think or your hope that things could be better.
- If you think they’d find it easier to talk to a spiritual care practitioner, offer to put them in touch with one.
- Try to treat someone who is dying as normally as possible and chat about what’s happening in your life. This makes it clear that they’re still a part of your life.
- Avoid talking in an overly optimistic way, for example, “You’ll be up in no time”. Such comments block the possibility of discussing how they’re really feeling – their anger, fears, faith and so on.
- Apologise if you think you’ve said the wrong thing.
- Let them know if you feel uncomfortable. They might be feeling uncomfortable too. It’s okay to say you don’t know what to say.
- Accept that you or the person dying may cry or express anger. These are natural responses to a distressing situation.
- Ask questions. Depending on how comfortable you feel asking direct questions and on their willingness to talk, you could ask, “Are you frightened of dying?” or you may prefer, “I wonder whether there’s something you want to talk about?”
- Encourage them to talk about their life, if they’re able to and interested. Talking about memories can help affirm that their life mattered and that they’ll be remembered.
- Just be there. Sometimes it’s the companionship that is most appreciated – sit together and watch television or read.
- Even if they’ve shown no religious interest in the past, that could change as death approaches. You could offer to pray together, but respect their wishes if this is not something they want.
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Fiona Wiseman, Senior Social Worker, Peter MacCallum Cancer Centre, VIC; Grace Berwald, Consumer; Peta Brydon, Metastatic McGrath Breast Care Clinical Nurse Consultant, The Kinghorn Cancer Centre, NSW; Kate Bunyan, Social Worker, Psychosocial Lead, Cancer and Palliative Supportive Care, Canberra Region Cancer Centre, ACT; Hayden Christie, Medical Oncologist and Clinical Director Cancer Care Service and Clinical Lead of the VAD Service for Wide Bay Hospital and Health Service, QLD; John Clements, Consumer; Claire Davies, Spiritual Care Practitioner, Peter MacCallum Cancer Centre, VIC; Joanne Dean, Nurse Practitioner, PEACE Team, Clare Holland House, ACT; A/Prof Michael Franco, Medical Oncologist and Palliative Medicine Physician, Deputy Head – Monash Medical School, Monash University, VIC; Dr Sally Greenaway, WSLHD Director of Supportive and Palliative Care, Senior Staff Specialist Clinical Haematology and Clinical Ethics Service, NSW; Maree Grier, Clinical Psychologist, Royal Brisbane and Women’s Hospital, QLD; Dr Catherine Joyce, National Manager, Advance Care Planning Australia; Mattesse Kitchin, Consumer; Penny Neller, Project Manager, End of Life Law for Clinicians, Australian Centre for Health Law Research, Queensland University of Technology, QLD; Caitriona Nienaber 13 11 20 Consultant, Cancer Council WA; Palliative Care Australia; A/Prof Joel Rhee, Head of Discipline of General Practice, School of Clinical Medicine, University of New South Wales, NSW.
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