Will I lose my independence?

Depending on your condition, you may need a little help with a few things or more help with lots of daily tasks. The amount of help you need is likely to change over time.

Your GP or palliative care team will discuss practical ways to maintain your sense of independence for as long as possible.

An occupational therapist (your GP or community service can give you a referral) may suggest changes or services to help you stay at home, such as installing handrails or a ramp. An occupational therapist or physiotherapist may also suggest or loan you equipment to help conserve your energy, such as a walking frame.

For many people, maintaining control over day-to-day decisions is important. If you feel you are losing your independence, your GP or palliative care team can talk with you about how to keep doing what’s important to you as your mobility and health change.

I see a palliative care person every eight weeks. Not for direct intervention but to discuss what particular things might be confronting me. It is a security to know that there is a team and individual nurses you can call upon if you need them.

Bryce

→ READ MORE: Who is in the palliative care team?