Palliative care for young people

As with palliative care for adults, palliative care for children and teenagers focuses on enhancing quality of life by addressing physical, practical, emotional and spiritual needs, and supporting the family. The team must also consider how the young person’s stage of development affects all these needs.

Because there may be uncertainty about the course of a child’s illness, elements of palliative care are often introduced early and combined with treatment that aims to actively treat the cancer.

Palliative care for young people involves health professionals with specialised skills in paediatrics (the care of children), as well as palliative care experts. Most children’s hospitals have some specialist paediatric palliative care services, which may provide care directly or advise the young person’s health care team.

Depending on their circumstances, young people can receive palliative care at home, in hospital or in a paediatric palliative care unit (hospice).


Tailored support

The organisations listed below specifically support young people with cancer and their families by providing palliative care, financial assistance, counselling, resources and respite care. 

The hospital social worker can also provide support, and may know of other useful networks in your local community.

  • CanTeen – supports young people aged 12–25 affected by cancer and bereavement through an interactive online forum, and resources on palliative care and end-of-life issues. Call 1800 835 932.
  • Camp Quality – offers support for children aged 0–13 living with cancer, and their families, through each stage of the cancer journey, including palliative care and bereavement. Call 1300 662 267.
  • Redkite – a charity that supports young people and their families through cancer by providing emotional guidance (including bereavement support), financial assistance and educational services. Call 1800 733 548.
  • Kids with Cancer Foundation Australia – provides financial assistance to families of children with cancer, and helps fund projects in public hospitals and oncology units. Call 1800 255 522.
  • Youth Cancer Services – provide hospital-based cancer treatment and support services for young people aged 15–25. For more information and to find the service closest to you, visit youthcancer.com.au.
  • Palliative Care Australia – provides a detailed resource, Journeys, to help families and carers prepare for situations they may face during their child’s illness. You can download this resource from palliativecare.org.au/teenagers-and-children.

Click on the icon below to download a PDF booklet on palliative care.


    Understanding Palliative Care

  • 735 kB

Printed copies are available for free - Call 13 11 20 to order

Instructions for downloading and reading EPUB files

Apple devices

The iBooks application must be installed on your Apple device before you can read the EPUB.
Different ways to download an EPUB file to your Apple device:

  • email EPUB files to yourself and transfer the attachment to iBooks.
  • copy EPUB files into DropBox (or a similar service) and use the DropBox app to send them to iBooks.
  • open EPUB files directly from Mobile Safari and open them in iBooks, where they are saved automatically by downloading the EPUB from the website.

Need more help? Visit: http://support.apple.com/kb/HT4059

Kobo

To download an EPUB file to your Kobo from a Windows computer:

  • download and save the EPUB directly onto your desktop.
  • connect your Kobo to your computer using the USB cable and tap “Connect” on your eReader.
  • select “Open folder to view files” to view the contents of your Kobo.
  • navigate to where you have stored your EPUB file in “Finder”, in documents or downloads, and drag and drop it into the Kobo window. You can now disconnect your Kobo to read the eBook.

To download an EPUB to your Kobo from a Mac:

  • download and save the EPUB directly onto your desktop.
  • connect your Kobo to your computer using the USB cable and tap “Connect” on your eReader.
  • open your “Finder” application.
  • select “Kobo eReader” from the listed devices to view the contents of your Kobo.
  • navigate to where you have stored your EPUB file in “Finder”, probably in documents or downloads, and drag and drop it into the Kobo window. You can now disconnect your Kobo to read the eBook.

Turn on your Kobo and your EPUB will be located in “eBooks”, while a PDF will be located in “Documents”.
Need more information? Visit: http://www.kobo.com/help/koboaura/response/?id=3784&type=3

Sony Reader

To download an EPUB file on your Sony Reader™:

  • ensure you have already installed the Reader™ Library for PC/Mac software
  • select the eBook you want from our website and click the link to download it.
  • connect the Reader™ to your computer.
  • open the Reader™ Library software and click “Library” in the left-hand pane and select the eBook to view it.

Need more help? Visit: https://au.readerstore.sony.com/apps_and_devices/

Amazon Kindle 2nd Generation devices

EPUB files can’t be read on the Amazon Kindle™. However, like most eReaders, Kindle™ 2nd Generation devices are able to display PDFs. We recommend that you download the PDF version of this booklet if you would like to read it on a Kindle™.
To transfer a PDF to your Kindle™ via USB cable from your computer or Mac:

  • download the PDF directly onto your computer.
  • connect the USB cable to your computer’s USB port, and the micro USB end of the cable to your Kindle™. Note: the Kindle™ won’t be available as a reading device while it is connected to your computer until it has been disconnected.
  • open the Kindle™ drive and several folders will appear inside. The “Documents” folder is where you will need to copy or drag the PDF to.
  • safely eject your Kindle™ from your computer and unplug the USB cable. Your content will appear on the Home Screen.

Kindle also provides a Kindle Personal Documents Service that allows users to send documents as an attachment directly to your eReader. For more information on this service, visit http://www.amazon.com/gp/help/customer/display.html/ref=help_search_1-1?ie=UTF8&nodeId=200767340&qid=1395967989&sr=1-1
For more information on accessing a PDF on your Kindle™, visit www.amazon.com/manageyourkindle, log in to your account and click on Personal Document Settings.
Need more help? Visit https://www.amazon.com/gp/help/customer/display.html?nodeId=200375630

Android and PC

You can also download and open eBooks on Android devices and PCs with appropriate apps or software installed. Suitable eReader apps for Android include Google Play Books, FBReader and Moon+ Reader. Suitable software for PCs include Calibre and Adobe Digital Editions.


This information was last reviewed in April 2017
View who reviewed this content
View our editorial policy

Support services

Coping with cancer?
Speak to a health professional or to someone who has been there, or find a support group or forum

Need legal and financial assistance?
Pro bono services, financial and legal assistance, and no interest loans

Looking for transport, accommodation or home help?
Practical advice and support during and after treatment

Cancer information

Key questions about advanced cancer
Answers to questions people may have when they are first told they have advanced cancer

End of life
Information for people who have been told that the end of life is near

View our publications
Guides and fact sheets for people with cancer, their families and friends

SHARE
TOP BACK TO TOP