Caring for someone in pain

You may be reading this because you are caring for someone with cancer-related pain. Caring for someone who is in pain can be very difficult and stressful. It’s natural to feel upset and helpless at times – it can be distressing to watch someone you love suffer.

This information answers some common questions carers might have. If you have other concerns, see Caring for someone with cancer, contact Carers NSW for support, or find services through the Carer Gateway.

Questions you may like to ask:


Listen to our podcasts on Cancer Affects the Carer Too and How to Help Someone with Cancer


What if the person with cancer asks for more pain medicine?

Only the person with cancer can know how much pain they feel. If you have been using a pain scale together, this can help you both communicate about the need for extra doses. The person with cancer may be experiencing breakthrough pain and may need a top-up dose. If this occurs regularly, they should see their doctor again for advice on managing it.

If you’re still worried the person with cancer is taking or wanting to take too much medicine, talk with their doctor about the dose they can safely have and other ways to help manage the pain.


Should I keep opioids locked up?

As with all medicines, it is necessary to keep opioids away from children, perhaps in a high cupboard. If a member of your household or a visitor has a drug-dependence problem, it is safest to keep the opioids in a secure place.


Can a person taking opioids sign legal documents?

When someone signs a legal document, such as a will, they must have capacity. This means they must be aware of what they are signing and fully understand the consequences of doing so. If they lack capacity, the documents can be contested later.

If a person’s ability to reason is affected by taking opioids, it makes sense to delay important decisions until the impairment has passed. Ask your GP or specialist to assess whether the person with cancer is fit to sign a legal document or talk to a lawyer about this before the document is signed.


When should I call the medical team?

Call a doctor or nurse for advice if the person with cancer:

  • becomes suddenly sleepy or confused
  • hasn’t had a bowel motion for three days or more
  • is vomiting and cannot take the pain relief
  • has severe pain despite top-up doses
  • is having difficulty taking the medicine or getting prescriptions filled
  • experiences other symptoms that the treatment team has mentioned, such as hallucinations with particular drugs.

What if they lose consciousness?

If the person with cancer becomes unconscious suddenly, call 000 immediately. Do not give opioids to an unconscious or very drowsy person.


Click on the icon below to download a PDF booklet on Pain and Cancer.


    Overcoming Cancer Pain

  • 314 kB

Printed copies are available for free - Call 13 11 20 to order

Instructions for downloading and reading EPUB files

Apple devices

The iBooks application must be installed on your Apple device before you can read the EPUB.
Different ways to download an EPUB file to your Apple device:

  • email EPUB files to yourself and transfer the attachment to iBooks.
  • copy EPUB files into DropBox (or a similar service) and use the DropBox app to send them to iBooks.
  • open EPUB files directly from Mobile Safari and open them in iBooks, where they are saved automatically by downloading the EPUB from the website.

Need more help? Visit: http://support.apple.com/kb/HT4059

Kobo

To download an EPUB file to your Kobo from a Windows computer:

  • download and save the EPUB directly onto your desktop.
  • connect your Kobo to your computer using the USB cable and tap “Connect” on your eReader.
  • select “Open folder to view files” to view the contents of your Kobo.
  • navigate to where you have stored your EPUB file in “Finder”, in documents or downloads, and drag and drop it into the Kobo window. You can now disconnect your Kobo to read the eBook.

To download an EPUB to your Kobo from a Mac:

  • download and save the EPUB directly onto your desktop.
  • connect your Kobo to your computer using the USB cable and tap “Connect” on your eReader.
  • open your “Finder” application.
  • select “Kobo eReader” from the listed devices to view the contents of your Kobo.
  • navigate to where you have stored your EPUB file in “Finder”, probably in documents or downloads, and drag and drop it into the Kobo window. You can now disconnect your Kobo to read the eBook.

Turn on your Kobo and your EPUB will be located in “eBooks”, while a PDF will be located in “Documents”.
Need more information? Visit: http://www.kobo.com/help/koboaura/response/?id=3784&type=3

Sony Reader

To download an EPUB file on your Sony Reader™:

  • ensure you have already installed the Reader™ Library for PC/Mac software
  • select the eBook you want from our website and click the link to download it.
  • connect the Reader™ to your computer.
  • open the Reader™ Library software and click “Library” in the left-hand pane and select the eBook to view it.

Need more help? Visit: https://au.readerstore.sony.com/apps_and_devices/

Amazon Kindle 2nd Generation devices

EPUB files can’t be read on the Amazon Kindle™. However, like most eReaders, Kindle™ 2nd Generation devices are able to display PDFs. We recommend that you download the PDF version of this booklet if you would like to read it on a Kindle™.
To transfer a PDF to your Kindle™ via USB cable from your computer or Mac:

  • download the PDF directly onto your computer.
  • connect the USB cable to your computer’s USB port, and the micro USB end of the cable to your Kindle™. Note: the Kindle™ won’t be available as a reading device while it is connected to your computer until it has been disconnected.
  • open the Kindle™ drive and several folders will appear inside. The “Documents” folder is where you will need to copy or drag the PDF to.
  • safely eject your Kindle™ from your computer and unplug the USB cable. Your content will appear on the Home Screen.

Kindle also provides a Kindle Personal Documents Service that allows users to send documents as an attachment directly to your eReader. For more information on this service, visit http://www.amazon.com/gp/help/customer/display.html/ref=help_search_1-1?ie=UTF8&nodeId=200767340&qid=1395967989&sr=1-1
For more information on accessing a PDF on your Kindle™, visit www.amazon.com/manageyourkindle, log in to your account and click on Personal Document Settings.
Need more help? Visit https://www.amazon.com/gp/help/customer/display.html?nodeId=200375630

Android and PC

You can also download and open eBooks on Android devices and PCs with appropriate apps or software installed. Suitable eReader apps for Android include Google Play Books, FBReader and Moon+ Reader. Suitable software for PCs include Calibre and Adobe Digital Editions.


This information was last reviewed in September 2018
View who reviewed this content
View our editorial policy

Support services

Online Community
Check out this supportive online community for people affected by cancer

Looking for transport, accommodation or home help?
Practical advice and support during and after treatment

Work and cancer
Information for employees, employers and workplaces dealing with cancer

Cancer information

Family and friends
Learn how a cancer diagnosis can affect friends and family

Emotions and cancer
Learn about the common reactions people have after they are diagnosed with cancer

View our publications
Guides and fact sheets for people with cancer, their families and friends

SHARE
TOP BACK TO TOP