Diagnosing lymphoedema

Your doctor will look at your medical history and examine the affected area. They will assess the level of swelling and any pitting, thickening or damage to the skin. If the lymphoedema is in an arm or leg, your doctor will compare the size of the affected limb to the other limb, and measure any differences.

Many doctors will refer you to a trained lymphoedema practitioner for a full assessment.

Learn more about:

Tests for lymphoedema

You may have some of the following tests:

  • Volume measurement – Having your limbs measured before treatment for cancer can help you determine the extent of any change after treatment. It can also help track changes to swelling over time and in response to treatment. If you have lymphoedema in an arm or leg, it will become larger (increase in volume) because of the additional lymph fluid trapped in the tissue. This increase in volume is usually measured with a tape measure or through bioimpedance spectroscopy.
  • Bioimpedance spectroscopy – This painless test uses very mild electrical signals to calculate how much fluid is in one limb compared to the other.
  • Photographic record – Some areas of the body (such as the head, neck, trunk and genitals) are difficult to measure. Photos may be taken, with your consent, as a way of assessing changes in swelling.
  • Doppler ultrasound – This test is used to rule out a blood clot (deep vein thrombosis) as the cause of your swelling.
  • Imaging tests – Tests such as magnetic resonance imaging (MRI), computed tomography (CT) or an ultrasound can show extra fluid in tissues or skin thickening. These tests are not commonly used to detect lymphoedema following cancer treatment.

Staging lymphoedema

Following a thorough physical assessment, your lymphoedema practitioner will assign a stage to the lymphoedema. This stage can be used to recommend appropriate treatment and management strategies. If left untreated, lymphoedema will continue to get worse and become more difficult to treat successfully.

  • Stage 0 (latent) – Circulation and drainage of lymph fluid is affected but there is no swelling.
  • Stage I (mild) – Fluid gathers and causes mild swelling that subsides when the affected limb is elevated (raised); there may be pitting of the swollen skin (pitting is when an indentation or mark remains in the skin after pressure is applied).
  • Stage II (moderate) – Swelling does not reduce when the affected limb is elevated; pitting of the skin is present; tissues begin to harden.
  • Stage III (severe) – There is a large amount of fluid; tissue in the affected area is hard (fibrotic); there is no pitting of the skin; the appearance of the skin changes (e.g. thickened areas, dark patches and wart-like bumps can appear).

Who will provide treatment?

  • Doctors – your GP, oncologist or a vascular surgeon may diagnose the condition, oversee your medical treatment and refer you to a trained lymphoedema practitioner.
  • Lymphoedema practitioners – may be a doctor, occupational therapist, physiotherapist or nurse with specialist training in lymphoedema management. They assess people with lymphoedema, develop treatment plans and provide ongoing care. 
  • Lymphoedema services – these specialist centres have expert teams who manage lymphoedema on a regular basis. They can provide education and advice, assess symptoms, develop treatment plans, and prescribe compression garments. They may also provide treatment such as manual lymphatic drainage and compression bandaging.

How to find a lymphoedema practitioner

The Australasian Lymphology Association maintains a national directory of trained lymphoedema practitioners. Use their ‘Find a practitioner‘ service to search the registry for a practitioner in your area, or talk to your doctor about a referral to a lymphoedema service. Public hospitals may assess and treat lymphoedema through physiotherapy or occupational therapy departments.

Click on the icon below to download a PDF fact sheet on Lymphoedema.

Printed copies are available for free - Call 13 11 20 to order

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Different ways to download an EPUB file to your Apple device:

  • email EPUB files to yourself and transfer the attachment to iBooks.
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To download an EPUB to your Kobo from a Mac:

  • download and save the EPUB directly onto your desktop.
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  • open your “Finder” application.
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Turn on your Kobo and your EPUB will be located in “eBooks”, while a PDF will be located in “Documents”.
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Sony Reader

To download an EPUB file on your Sony Reader™:

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  • connect the Reader™ to your computer.
  • open the Reader™ Library software and click “Library” in the left-hand pane and select the eBook to view it.

Need more help? Visit: https://au.readerstore.sony.com/apps_and_devices/

Amazon Kindle 2nd Generation devices

EPUB files can’t be read on the Amazon Kindle™. However, like most eReaders, Kindle™ 2nd Generation devices are able to display PDFs. We recommend that you download the PDF version of this booklet if you would like to read it on a Kindle™.
To transfer a PDF to your Kindle™ via USB cable from your computer or Mac:

  • download the PDF directly onto your computer.
  • connect the USB cable to your computer’s USB port, and the micro USB end of the cable to your Kindle™. Note: the Kindle™ won’t be available as a reading device while it is connected to your computer until it has been disconnected.
  • open the Kindle™ drive and several folders will appear inside. The “Documents” folder is where you will need to copy or drag the PDF to.
  • safely eject your Kindle™ from your computer and unplug the USB cable. Your content will appear on the Home Screen.

Kindle also provides a Kindle Personal Documents Service that allows users to send documents as an attachment directly to your eReader. For more information on this service, visit http://www.amazon.com/gp/help/customer/display.html/ref=help_search_1-1?ie=UTF8&nodeId=200767340&qid=1395967989&sr=1-1
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You can also download and open eBooks on Android devices and PCs with appropriate apps or software installed. Suitable eReader apps for Android include Google Play Books, FBReader and Moon+ Reader. Suitable software for PCs include Calibre and Adobe Digital Editions.

This information was last reviewed in June 2017
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