Caring for yourself

Many carers say that providing care can affect their health and wellbeing, relationships, career and finances. Caring can be rewarding, but it may also be difficult at times, both physically and emotionally.

The responsibility of attending to the needs of the person you are caring for may mean that you neglect your own needs. Some carers have said they felt like they lost their identity when they started the caring role. It may feel as though your career, interests and health are no longer important or have to take second priority.

It’s important to think about yourself for your own sake, but if your natural inclination is to focus completely on the person with cancer, remember that looking after yourself will also help you provide better quality of care over a longer period of time.

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Listen to podcasts on Cancer Affects the Carer Too and How to Help Someone with Cancer


Keeping healthy

As carers are busy looking after someone else, they can find it difficult to find time to look after their own health and wellbeing.

When they do notice that they’re not feeling well, they might downplay their own health needs. You can acknowledge that you are not feeling well without comparing it to how the person with cancer is feeling.

Maintaining fitness and eating well can help carers cope with the physical and emotional demands of caring.

Ways to stay healthy

  • Eat healthy meals and snacks. If the person has long appointments or is in hospital, you may need to bring healthy food from home.
  • Try to get enough sleep and rest. Tiredness and exhaustion often make everything seem harder. If your sleep is disrupted by your caring responsibilities, try to grab a few minutes’ rest throughout the day whenever the opportunity comes up.
  • Avoid using alcohol or cigarettes to relax. These may seem to help for a short time, but they contribute to other problems.
  • Try to exercise for 15–30 minutes each day. This can increase your energy levels, help you sleep better and improve your mood. If you can leave the house, a walk, run or swim may help. An exercise bike or a yoga/meditation mat can allow you to exercise at home.
  • See Ways to manage your emotions for ways to look after your emotional health.
  • Have regular check-ups with your own doctor and also go to see them if you notice changes in your health such as fatigue, sleep problems, weight changes or depression.

Asking others for help

Asking for and accepting assistance is sometimes difficult. However, if you seem to be coping, family and friends may not realise you need help. They may be waiting for you to ask for help because they don’t know how to offer or fear they will be intruding or disturbing you. Let them know their support is appreciated and that it’s not an interference. Asking for help is not a sign of failure, and it may relieve some pressure and allow you to spend more time with the person you’re caring for.

   – Gavin

You may want to hold a family meeting to discuss how everyone can help and then prepare a roster. Tasks that can be done by or shared with others include:

  • doing household chores such as cooking, cleaning, laundry, ironing, shopping or gardening
  • driving the person with cancer to appointments and/or attending appointments with them
  • picking up children from school or other activities
  • looking up information
  • keeping others updated
  • staying with the person you care for while you take a break.

How to cope

Caring for someone with cancer is not always easy or satisfying. Many carers say they feel overburdened and resentful. The following strategies may help you cope:

Focus on the value of caring – Acknowledging the rewards of caring may help you feel better. These include learning new skills, strengthening your relationship as you demonstrate your love and commitment, and gaining satisfaction from providing care to someone in need.

Set boundaries and limits – Outline what you are comfortable helping with, the level of workload you can manage, and what your own needs are. For example, if you find it difficult to wash or provide intimate care to the person you are looking after, investigate alternatives such as regular visits from a care worker.

Organise your time – It may not be possible to do everything you want to do, so prioritise your weekly tasks and activities. You can use a diary to keep track of information and appointments. Identifying and dealing with immediate priorities can confirm that you are on track, even when the future is uncertain.

Keep a journal – Writing down what has been happening may allow you to release your worries or frustrations. It’s also a chance to reflect on how you’re coping and identify areas you need assistance with. Reading back through journal entries can provide perspective – you may see that some days are better than others.

Don’t expect to be perfect – Sometimes you may feel like you could have done something differently or handled a situation better. Allow yourself not to be perfect. Each new day brings a fresh start and a chance to remind yourself that you’re doing your best.

Take time for yourself – Try to stay involved in activities you enjoy. It’s okay to find pleasure in life, despite the difficulties, and to want to stay connected to and talk about things other than cancer. Even short interludes may give you the chance to do something for yourself (e.g. relaxation/meditation, short walks, reading, music, brief social contact).

Deal with uncertainty – When the person you care for is having treatment, life may seem less predictable and it may be hard to plan ahead. Carers often find this uncertainty stressful and feel that their life is in limbo. You may find it easier to cope if you focus on those things you can control right now. Letting go of what you can’t control leaves you with more energy and mental capacity.

It may also help to learn more about cancer and possible treatment options. Going with the person to doctors’ visits can give you a better understanding of the treatment plan.


Taking a break (respite care)

Respite care allows carers to have a break. It may be provided at home, in a residential care facility (such as an aged care facility) and, in some cases, in a hospital or palliative care unit (hospice). It can be for a couple of hours, overnight or a few days.

You can access respite care for any reason, including to:

  • take time out to access health care for yourself
  • visit friends or other family members
  • catch up on some sleep at home
  • run errands, such as grocery shopping
  • attend events, such as a school assembly or a wedding.

Some carers don’t access respite care because they feel guilty or anxious about leaving the person they are caring for. However, the service exists because caring can be difficult and may affect your wellbeing.

By taking a break, you will probably find that you can be more effective in your caring role. The person you are caring for can also have a break from you and interact with other people.

Commonwealth Respite and Carelink Centres, located across Australia, provide information on local carer respite and support services. Call 1800 052 222 during business hours, or 1800 059 059 for emergency respite support outside business hours.


Working while caring

Many people who care for someone with cancer are also employed. They may work full-time, part-time, casually or have their own business. Working carers often have to balance the needs of the person they are caring for with the demands of the workplace. If the person with cancer does not work and is dependent on you, there may be financial pressure on you to continue earning an income.

Your decision to continue working will probably depend on a number of factors, including:

  • how unwell the person with cancer is
  • what your caring and work duties involve
  • the amount of help or respite care available
  • your finances
  • what will give you peace of mind.

Before making changes to your working arrangements, talk over your thoughts with your employer, family and friends. They may be able to support you with flexible working arrangements.

To find out more about working while caring for someone, visit workingcarers.org.au or carersnsw.org.au/advice. You can contact Carers NSW for support and counselling.

For more on this, call Cancer Council 13 11 20, or see Cancer, work and you and Cancer care and your rights.


If caring becomes too much

You might find providing care too difficult, particularly if the person you’re caring for insists you do all the caring rather than involving others. It may be that the physical demands are becoming too much, particularly if you are older or have your own health issues. You could also find the role is taking an emotional toll.

Perhaps you know you need support but don’t want to disappoint the person you’re caring for. Try talking to your GP or the social worker at the treatment centre, or calling Cancer Council 13 11 20.

You might also find it helpful to see a counsellor, either in person or via phone, email or Skype. The counsellor may help you see ways to make caring more manageable.

Your GP or Cancer Council can refer you to a counsellor. You can also access the National Carer Counselling Program by calling 1800 242 636. For 24-hour crisis support, call Lifeline on 13 11 14.


Young carers

There are about 275,000 carers under 25 in Australia. The Carers Associations in each state and territory offer information and support tailored for young carers. Visit Young Carers or call 1800 242 636 to find out more.


Click on the icon below to download a PDF booklet on caring for someone with cancer


Printed copies are available for free - Call 13 11 20 to order

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Apple devices

The iBooks application must be installed on your Apple device before you can read the EPUB.
Different ways to download an EPUB file to your Apple device:

  • email EPUB files to yourself and transfer the attachment to iBooks.
  • copy EPUB files into DropBox (or a similar service) and use the DropBox app to send them to iBooks.
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Need more help? Visit: http://support.apple.com/kb/HT4059

Kobo

To download an EPUB file to your Kobo from a Windows computer:

  • download and save the EPUB directly onto your desktop.
  • connect your Kobo to your computer using the USB cable and tap “Connect” on your eReader.
  • select “Open folder to view files” to view the contents of your Kobo.
  • navigate to where you have stored your EPUB file in “Finder”, in documents or downloads, and drag and drop it into the Kobo window. You can now disconnect your Kobo to read the eBook.

To download an EPUB to your Kobo from a Mac:

  • download and save the EPUB directly onto your desktop.
  • connect your Kobo to your computer using the USB cable and tap “Connect” on your eReader.
  • open your “Finder” application.
  • select “Kobo eReader” from the listed devices to view the contents of your Kobo.
  • navigate to where you have stored your EPUB file in “Finder”, probably in documents or downloads, and drag and drop it into the Kobo window. You can now disconnect your Kobo to read the eBook.

Turn on your Kobo and your EPUB will be located in “eBooks”, while a PDF will be located in “Documents”.
Need more information? Visit: http://www.kobo.com/help/koboaura/response/?id=3784&type=3

Sony Reader

To download an EPUB file on your Sony Reader™:

  • ensure you have already installed the Reader™ Library for PC/Mac software
  • select the eBook you want from our website and click the link to download it.
  • connect the Reader™ to your computer.
  • open the Reader™ Library software and click “Library” in the left-hand pane and select the eBook to view it.

Need more help? Visit: https://au.readerstore.sony.com/apps_and_devices/

Amazon Kindle 2nd Generation devices

EPUB files can’t be read on the Amazon Kindle™. However, like most eReaders, Kindle™ 2nd Generation devices are able to display PDFs. We recommend that you download the PDF version of this booklet if you would like to read it on a Kindle™.
To transfer a PDF to your Kindle™ via USB cable from your computer or Mac:

  • download the PDF directly onto your computer.
  • connect the USB cable to your computer’s USB port, and the micro USB end of the cable to your Kindle™. Note: the Kindle™ won’t be available as a reading device while it is connected to your computer until it has been disconnected.
  • open the Kindle™ drive and several folders will appear inside. The “Documents” folder is where you will need to copy or drag the PDF to.
  • safely eject your Kindle™ from your computer and unplug the USB cable. Your content will appear on the Home Screen.

Kindle also provides a Kindle Personal Documents Service that allows users to send documents as an attachment directly to your eReader. For more information on this service, visit http://www.amazon.com/gp/help/customer/display.html/ref=help_search_1-1?ie=UTF8&nodeId=200767340&qid=1395967989&sr=1-1
For more information on accessing a PDF on your Kindle™, visit www.amazon.com/manageyourkindle, log in to your account and click on Personal Document Settings.
Need more help? Visit https://www.amazon.com/gp/help/customer/display.html?nodeId=200375630

Android and PC

You can also download and open eBooks on Android devices and PCs with appropriate apps or software installed. Suitable eReader apps for Android include Google Play Books, FBReader and Moon+ Reader. Suitable software for PCs include Calibre and Adobe Digital Editions.


This information was last reviewed in September 2017
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Support services

Support for carers
Cancer Council NSW offers support online, over the phone and in person and can link you to our practical support services

Cancer Council Online Community
A supportive online community for people affected by cancer, including family, friends and carers

Cancer information

What is cancer?
How cancer starts and spreads

Emotions and cancer
Here are some suggestions for managing the physical effects of the diagnosis, coping with the diagnosis, as well as how to get support.

View our publications
Guides and fact sheets for people with cancer, their families and friends

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