Seeking support
When you are first diagnosed with cancer, you may feel that you don’t have enough time or energy to think about research. For most people, their key goal will be to start treatment as soon as possible and then concentrate on getting better.
However, some people may want to take part in research or they may be invited to take part. Being involved may give you an opportunity to feel more supported during or after cancer treatment. You may also find the experience rewarding.
If you agree to participate, you may have mixed emotions during or after the study. Although people who participate in trials generally report a positive experience, you may find that the extra appointments are stressful or that dealing with a different health care team is unsettling or confusing. The treatment you’re having may cause side effects, or you may worry that you’re not getting the best treatment.
After the trial ends, you may be relieved because you no longer have this commitment. You may be happy with the outcome and feel ready to put the cancer behind you. On the other hand, you may feel worried because your health won’t be monitored as frequently or disappointed that the cancer has not gone into remission.
It’s important to discuss any worries with your doctor or clinical trials or research nurse. They can help you understand information about the research so that you feel reassured and positive about your involvement. Make sure you understand the aims of the research before you participate so you have realistic expectations.
Useful websites
You can find many useful resources online, but not all websites are reliable. These websites are good sources of support and information. You can also see a list of Australian clinical trials websites.
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Australian |
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Australian Clinical Trials |
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Cancer Council Online Community |
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Consumer Involvement in Cancer Cooperative Trials Groups |
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Healthdirect Australia |
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National Health and Medical Research Council (NHMRC) |
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NHMRC Clinical Trials Centre |
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Pharmaceutical Benefits Scheme |
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Therapeutic Goods Administration |
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International |
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ClinicalTrials.gov (US) |
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EU Clinical Trials Register |
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International Clinical Trials Registry Platform |
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ISRCTN registry |
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NHS Choices – Clinical Trials |
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World Health Organization |
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This information was last reviewed in July 2018
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