Seeking support

When you are first diagnosed with cancer, you may feel that you don’t have enough time or energy to think about research. For most people, their key goal will be to start treatment as soon as possible and then concentrate on getting better.

However, some people may want to take part in research or they may be invited to take part. Being involved may give you an opportunity to feel more supported during or after cancer treatment. You may also find the experience rewarding.

If you agree to participate, you may have mixed emotions during or after the study. Although people who participate in trials generally report a positive experience, you may find that the extra appointments are stressful or that dealing with a different health care team is unsettling or confusing. The treatment you’re having may cause side effects, or you may worry that you’re not getting the best treatment.

After the trial ends, you may be relieved because you no longer have this commitment. You may be happy with the outcome and feel ready to put the cancer behind you. On the other hand, you may feel worried because your health won’t be monitored as frequently or disappointed that the cancer has not gone into remission.

It’s important to discuss any worries with your doctor or clinical trials or research nurse. They can help you understand information about the research so that you feel reassured and positive about your involvement. Make sure you understand the aims of the research before you participate so you have realistic expectations.


Useful websites

You can find many useful resources online, but not all websites are reliable. These websites are good sources of support and information. You can also see a list of Australian clinical trials websites.

Australian

Australian Clinical Trials

australianclinicaltrials.gov.au

Cancer Council Online Community

cancercouncil.com.au/OC

Consumer Involvement in Cancer Cooperative Trials Groups

consumerlearning. canceraustralia.gov.au

Healthdirect Australia

healthdirect.gov.au

National Health and Medical Research Council (NHMRC)

nhmrc.gov.au

NHMRC Clinical Trials Centre

ctc.usyd.edu.au

Pharmaceutical Benefits Scheme

pbs.gov.au

Therapeutic Goods Administration

tga.gov.au

International

ClinicalTrials.gov (US)

clinicaltrials.gov

EU Clinical Trials Register

clinicaltrialsregister.eu

International Clinical Trials Registry Platform

apps.who.int/trialsearch

ISRCTN registry

isrctn.com

NHS Choices – Clinical Trials

www.nhs.uk/conditions/ clinical-trials

World Health Organization

who.int/topics/clinical_trials


Click on the icon below to download a PDF booklet on cancer support groups.


Printed copies are available for free - Call 13 11 20 to order

Instructions for downloading and reading EPUB files

Apple devices

The iBooks application must be installed on your Apple device before you can read the EPUB.
Different ways to download an EPUB file to your Apple device:

  • email EPUB files to yourself and transfer the attachment to iBooks.
  • copy EPUB files into DropBox (or a similar service) and use the DropBox app to send them to iBooks.
  • open EPUB files directly from Mobile Safari and open them in iBooks, where they are saved automatically by downloading the EPUB from the website.

Need more help? Visit: http://support.apple.com/kb/HT4059

Kobo

To download an EPUB file to your Kobo from a Windows computer:

  • download and save the EPUB directly onto your desktop.
  • connect your Kobo to your computer using the USB cable and tap “Connect” on your eReader.
  • select “Open folder to view files” to view the contents of your Kobo.
  • navigate to where you have stored your EPUB file in “Finder”, in documents or downloads, and drag and drop it into the Kobo window. You can now disconnect your Kobo to read the eBook.

To download an EPUB to your Kobo from a Mac:

  • download and save the EPUB directly onto your desktop.
  • connect your Kobo to your computer using the USB cable and tap “Connect” on your eReader.
  • open your “Finder” application.
  • select “Kobo eReader” from the listed devices to view the contents of your Kobo.
  • navigate to where you have stored your EPUB file in “Finder”, probably in documents or downloads, and drag and drop it into the Kobo window. You can now disconnect your Kobo to read the eBook.

Turn on your Kobo and your EPUB will be located in “eBooks”, while a PDF will be located in “Documents”.
Need more information? Visit: http://www.kobo.com/help/koboaura/response/?id=3784&type=3

Sony Reader

To download an EPUB file on your Sony Reader™:

  • ensure you have already installed the Reader™ Library for PC/Mac software
  • select the eBook you want from our website and click the link to download it.
  • connect the Reader™ to your computer.
  • open the Reader™ Library software and click “Library” in the left-hand pane and select the eBook to view it.

Need more help? Visit: https://au.readerstore.sony.com/apps_and_devices/

Amazon Kindle 2nd Generation devices

EPUB files can’t be read on the Amazon Kindle™. However, like most eReaders, Kindle™ 2nd Generation devices are able to display PDFs. We recommend that you download the PDF version of this booklet if you would like to read it on a Kindle™.
To transfer a PDF to your Kindle™ via USB cable from your computer or Mac:

  • download the PDF directly onto your computer.
  • connect the USB cable to your computer’s USB port, and the micro USB end of the cable to your Kindle™. Note: the Kindle™ won’t be available as a reading device while it is connected to your computer until it has been disconnected.
  • open the Kindle™ drive and several folders will appear inside. The “Documents” folder is where you will need to copy or drag the PDF to.
  • safely eject your Kindle™ from your computer and unplug the USB cable. Your content will appear on the Home Screen.

Kindle also provides a Kindle Personal Documents Service that allows users to send documents as an attachment directly to your eReader. For more information on this service, visit http://www.amazon.com/gp/help/customer/display.html/ref=help_search_1-1?ie=UTF8&nodeId=200767340&qid=1395967989&sr=1-1
For more information on accessing a PDF on your Kindle™, visit www.amazon.com/manageyourkindle, log in to your account and click on Personal Document Settings.
Need more help? Visit https://www.amazon.com/gp/help/customer/display.html?nodeId=200375630

Android and PC

You can also download and open eBooks on Android devices and PCs with appropriate apps or software installed. Suitable eReader apps for Android include Google Play Books, FBReader and Moon+ Reader. Suitable software for PCs include Calibre and Adobe Digital Editions.


This information was last reviewed in July 2018
View who reviewed this content
View our editorial policy

Support services

Online Community
Check out this supportive online community for people affected by cancer

Cancer Connect
Talk to someone who has experienced cancer

Looking for transport, accommodation or home help?
Practical advice and support during and after treatment

Cancer information

Cancer treatments
Learn about common cancer treatments, such as surgery, chemotherapy and radiation therapy

Dealing with the diagnosis
Common reactions to a cancer diagnosis and how to find hope

View our publications
Guides and fact sheets for people with cancer, their families and friends

SHARE
TOP BACK TO TOP