It’s often hard to find the right words to start or continue a conversation. The suggestions below may help you work out what you want to say. Although these are grouped by age, you may find that the ideas in a younger or older age bracket work for your child. Read tips on how to answer specific questions.
Infants, toddlers & preschoolers
| About cancer | “Mummy is sick and needs to go to hospital to get better. You can visit her there soon.”
“I have an illness called cancer. The doctor is giving me medicine to help me get better. The medicine might make me feel sick or tired some days, but I might feel fine on other days.” |
| To clear up misinformation about cancer | “Sometimes girls and boys worry that they thought or did something to cause cancer. No-one can make people get cancer, and we can’t wish it away either.”
“How do you think people get cancer?” “We can still have lots of kisses and cuddles– you cannot catch cancer from me or from anyone who has it.” |
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To explain changes and offer reassurance | “Mummy needs to go to the hospital every day for a few weeks, so Daddy will be taking you to preschool/school instead.”
“Grandpa is sick so we won’t see him for a while. He loves your pictures, so maybe you can draw me some to take to hospital.” “Mummy has to stay in bed a lot and isn’t able to play, but she can still cuddle you.” |
Younger children
| About cancer | “We’ve had some bad news. I’ve got cancer. We don’t know what we’re dealing with yet, but I’m going to have surgery so that the doctors can have a look and find out.”
“You know that Mum has been sick a lot lately. The doctors told us today that the tests show she has cancer. The good news is that she has an excellent chance of getting better.” |
| To clear up misinformation about cancer | “We can still have lots of kisses and cuddles – you cannot catch cancer from me or from anyone who has it.”
“Cancer is a disease of the body that can be in different places for different people.” “Even though your friends at school might say that cancer is really bad and I will get very sick, they don’t know everything about this cancer. I will tell you what I know about my cancer.” |
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To explain changes and offer reassurance | “The doctors will take good care of me. I will have treatment soon, which I’ll tell you about when it starts.”
“Even though things might change a bit at home, you’ll still be able to go to tennis lessons while Dad is having his treatment.” “Mum is going to be busy helping Grandma after she comes out of hospital. There are ways we can all help out, but mostly things won’t change for you.” |
Older children and teenagers
| About cancer | “The doctors say Dad has a problem with his blood. That’s why he’s been very tired lately. The illness is called Hodgkin lymphoma. Dad will have treatment to make him well again.”
“Lots of people get cancer. We don’t know why it happens. Most people get better and we expect I will get better too.” |
| To clear up misinformation about cancer | “There are lots of different types of cancer and they’re all treated differently. Even though Uncle Bob had cancer, it might not be the same for me.”
“The doctor doesn’t know why I got cancer. It doesn’t mean that you’ll get cancer too. It’s not contagious (you can’t catch it) and the cancer I have doesn’t run in families.” “Even though Grandma has cancer, the doctors say she’ll probably be okay because she was diagnosed early.” |
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To explain changes and offer reassurance | “Things will be different while Dad’s having treatment, and when I can’t drive you to soccer training, Annie will drive you instead.”
“After my operation, there are a few things I won’t be able to do for a while, like lifting things and driving. Our friends are going to help by dropping off meals.” “What things would you like to help with at home?” “If you think of any questions or have any worries, you can come and talk to me. It’s okay if you want to talk to someone else too.” |
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We thank the reviewers of this book: Professor Kate White, Chair of Nursing, The University of Sydney, NSW; Sarah Ellis, Psychologist, Behavioural Sciences Unit, Kids with Cancer Foundation, Sydney Children’s Hospital, NSW; Kate Fernandez, 13 11 20 Consultant, Cancer Council SA; Chandra Franken, Program Manager – NSW & ACT, Starlight Children’s Foundation, NSW; John Friedsam, General Manager of Divisions, CanTeen, NSW; Keely Gordon-King, Cancer Counselling Psychologist, Cancer Council Queensland; Stephanie Konings, Research Officer, CanTeen, NSW; Sally and Rosie Morgan, Consumers; Dr Pandora Patterson, General Manager, Research and Youth Cancer Services, Canteen, and Adjunct Associate Professor, Cancer Nursing Research Unit, The University of Sydney, NSW and Visiting Professor, Faculty of Health and Life Sciences, Coventry University, UK; Suzanne Rumi, Consumer; Michael Sieders, Primary School Program Manager, Camp Quality.
We would also like to thank the health professionals, consumers, organisations and editorial teams who have worked on previous editions of this title, and we are grateful to the parents and young people whose real-life stories have added to the richness and relevance of this book.
We thank and acknowledge Dr Paula K. Rauch, MD, Founding Director, Marjorie E. Korff PACT (Parenting At a Challenging Time) Program and Associate Professor of Psychiatry, Harvard Medical School, whose research and writing on helping parents talk to their children about cancer was used as source material for this book and has been adapted in several sections: pages 8 -11, Different views of cancer; page 24, Answering key questions: Are you going to die?; pages 26 -27, Involving the school or preschool; pages 30 -31, Prepare for hospital and treatment centre visits; and page 37, Encouraging family time. We also thank the American Cancer Society for permission to use and adapt material on pages 8 -11 from its book Cancer in Our Family: Helping children cope with a parent’s illness (2013); Macmillan Cancer Support for permission to use its book Talking to Children and Teenagers When an Adult Has Cancer (2013) as a source of information; Jessica Watt, Oncology Social Worker, Children’s Hospital Westmead, for her contribution on page 18, When another child has cancer; Diane McGeachy, Hobart Counselling Centre, for contributing material for page 38, Spending one-on-one time; and Dr Ranjana Srivastava, and The Guardian for permission to adapt €œHow do you tell your children you have cancer? €_x009d_, on pages 21 and 47 – full story is available at https://www.theguardian.com/society/2015/nov/29/how-do-you-tell-your-children-you-have-cancer.
View the Cancer Council NSW editorial policy.
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