For most people, the cancer experience doesn’t end on the last day of treatment. Life after cancer treatment can present its own challenges. You may have mixed feelings when treatment ends, and worry that every ache and pain means the cancer is coming back.
Some people say that they feel pressure to return to “normal life”. It is important to allow yourself time to adjust to the physical and emotional changes, and establish a new daily routine at your own pace. Your family and friends may also need time to adjust.
Cancer Council 13 11 20 can help you connect with other people who have had testicular cancer, and provide you with information about the emotional and practical aspects of living well after cancer.
For more on this, see Living well after cancer.
Learn more about:
- Follow-up appointments
- Dealing with feelings of sadness
- Looking after yourself
- What if testicular cancer returns?
Follow-up appointments
After treatment ends, you will have regular appointments to monitor your health, manage any long-term side effects and check that the cancer hasn’t come back. Active surveillance for testicular cancer usually continues for 5–10 years. How often you see your doctor will depend on the cancer type, treatments, and side effects you have. During the check-ups, you will usually have a physical examination and you may have blood tests (to monitor tumour markers), x-rays or scans.
Treatment for testicular cancer usually has a good outcome and the majority of people with early-stage cancer will be cured. Only about 2–5% of people who have had cancer in one testicle develop cancer in the other testicle. However, some people have a recurrence of cancer in another part of the body.
It’s important to go to all your follow-up appointments, as tests can detect cancer recurrence early, when it is easier to treat. Regularly looking at and feeling your remaining testicle to know what’s normal, can also help find cancer in that testicle early. Between follow-up appointments, it’s important to let your doctor know immediately of any symptoms or health problems.
Dealing with feelings of sadness
If you have continued feelings of sadness, have trouble getting up in the morning or have lost motivation to do things that previously gave you pleasure, you may be experiencing depression. This is quite common among people who have had cancer.
Talk to your GP, because counselling or medication – even for a short time – may help. Some people can get a Medicare rebate for sessions with a psychologist. Cancer Council may also run a counselling program in your area.
For information about coping with depression and anxiety, call Beyond Blue on 1300 22 46 36. For 24-hour crisis support, call Lifeline 13 11 14.
The Thing About Cancer podcast
Listen to our podcast The Thing About Cancer for information and insights that can help you navigate through the challenges of living with cancer.
Looking after yourself
Cancer can cause physical and emotional strain, so it’s important to look after your wellbeing. Cancer Council has free booklets and programs to help you during and after treatment.
Call 13 11 20 to find out more, or see Managing cancer side effects, Exercise after a cancer diagnosis, Complementary therapies, Emotions and cancer, Nutrition and cancer, Sexuality, intimacy and cancer, Fertility and cancer, LGBTQI+ people and cancer, and Practical concerns.
Alternative therapies are therapies used instead of conventional medical treatments. These are unlikely to be scientifically tested, may prevent successful treatment of the cancer and can be harmful. Cancer Council does not recommend the use of alternative therapies as a cancer treatment.
What if testicular cancer returns?
Sometimes testicular cancer does come back (recur) after treatment. This is why active surveillance is important. There is still a good chance that a recurrence may be successfully treated.
Treatment will depend on whether the cancer is in the other testicle, where it has spread to, and what type of testicular cancer it is. People with recurrent cancer may have surgery, chemotherapy, radiation therapy or a combination of treatments. Your doctor will discuss options with you.
Key resource
Download a PDF booklet on this topic.
More resources
Dr Benjamin Thomas, Urological Surgeon, The Royal Melbourne Hospital and The University of Melbourne, VIC; A/Prof Ben Tran, Genitourinary Medical Oncologist, Peter MacCallum Cancer Centre, Walter and Eliza Hall Institute of Medical Research and The University of Melbourne, VIC; Dr Nari Ahmadi, Urologist and Urological Cancer Surgeon, Chris O’Brien Lifehouse, NSW; Helen Anderson, Genitourinary Cancer Nurse Navigator, Gold Coast University Hospital, QLD; Anita Cox, Youth Cancer – Cancer Nurse Coordinator, Gold Coast University Hospital, QLD; Dr Tom Ferguson, Medical Oncologist, Fiona Stanley Hospital, WA; Dr Leily Gholam Rezaei, Radiation Oncologist, Chris O’Brien Lifehouse and Royal Prince Alfred Hospital, NSW; Dheeraj Jain, Consumer; Amanda Maple, 13 11 20 Consultant, Cancer Council SA; Jessica Medd, Senior Clinical Psychologist, Department of Urology, Concord Repatriation General Hospital and Headway Health, NSW.
View the Cancer Council NSW editorial policy.
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