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What are patient responsibilities?
Learn about the important role of patient responsibilities in cancer care, from treating staff and other patients with respect to following guidelines to honest and open communication and attending appointments.
Learn more about:
- Building a positive relationship with your health care team
- Being considerate
- Being honest and open
- Being flexible
Building a positive relationship with your health care team
Health professionals understand that dealing with cancer is challenging and many people feel vulnerable at this time. Developing an open and trusting relationship with your health care team during this time is important.
If you expect your health care providers to behave in a certain way – for example, to communicate openly – it helps to behave the same way in return.
Many hospitals and treatment centres have guidelines on patient responsibilities that cover the following 3 areas to help ensure effective collaboration and support throughout your treatment.
Being considerate
These responsibilities relate to practical issues while on-site, including:
- treating staff and other patients with courtesy and respect
- being on time for appointments or letting the health care provider know if you are unable to attend an appointment
- following any policies of your health service, such as visiting hours, using mobile phones, or keeping the area smoke-free area
- seeking permission if you would like to record consultations.
Being honest and open
It is important that your health care team has all the information they need to offer you the best possible treatment.
Tell your health care team if:
- you have a question or problem – it’s important that you talk about issues you don’t understand or that are troubling you so your team can help. If English is not your first language, you can ask for an interpreter
- there are factors in your life that might affect treatment decisions – for example, if you live alone or care for a young family
- you have side effects or pain – your team may be able to adjust the treatment or offer you medicine to relieve side effects
- you’re seeing more than one doctor or another health professional (including complementary or alternative therapy practitioners) for any part of your care
- you decide not to follow their advice – for example, by not taking the prescribed medicine or having certain tests
- you are taking any other medicines (including over-the-counter drugs, complementary and alternative medicines, and bush medicines). Some medicines interact with cancer drugs, and this can cause side effects or reduce a treatment’s effectiveness.
Being flexible
Your doctor will recommend treatment based on your initial test results, your overall health and the cancer care guidelines. Depending on how you respond to treatment, your doctor may have to adjust the agreed treatment plan. It’s important to be flexible and understand that your treatment may change over time. If changes happen, you still have the right to be involved as an equal partner when deciding on a new treatment plan.
It’s common to have to wait for tests and treatment in public hospitals. Waiting times depend on many factors, including the type of cancer, its stage, the treatment, and the hospital’s schedule. Waiting for treatment can be stressful – if you are anxious, speak to your doctor or call Cancer Connect 13 11 20.
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More resources
Elena Schiena, Social Work – Clinical Lead, Peter MacCallum Cancer Centre, VIC; Tracey Bilson, Consumer; Tarishi Desai, Manager – Treatment & Supportive Care, McCabe Centre for Law & Cancer, VIC; Sarah Flynn, 13 11 20 Consultant, Cancer Council SA; Kim Greco, Lung Cancer Nurse Consultant, Flinders Medical Centre, SA; Dr Catherine Joyce, National Manager, Advance Care Planning Australia; Hall & Wilcox Lawyers; Linda Magann, CNC Palliative Care, St George Hospital, NSW; Joanna Page, Consumer; Brian Stace, Consumer; Dr Sabine Wardle, Senior Social Worker, Embrace Care Solutions and Charles Sturt University, NSW.
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