Managing seizures

A brain tumour or its treatment can sometimes cause seizures, which are disruptions to the normal patterns of electrical impulses in the brain. They may also be called fits or convulsions.

Learn more about:

• Generalised seizures
• Focal seizures
• Ways to prevent seizures
• Ways to help someone having a seizure
• Anticonvulsant medicines

Seizures can be divided into two main groups:

Generalised seizures

These occur when the whole brain is affected, and typically involve the whole body. The most common type is called a tonic-clonic seizure (previously known as a grand mal seizure).

A seizure often starts with a loss of consciousness. The person’s muscles may stiffen, their limbs may jerk rhythmically, and their breathing may be shallow for up to two minutes. They may bite their tongue, and lose bladder and bowel control.

Focal seizures

Also called partial seizures, these occur when one area (lobe) of the brain is affected. The seizure affects one part of the body, such as an arm or leg. The symptoms depend on the area of the brain involved. They may include twitching; jerking; tingling or numbness; and altered sensations, such as changed vision or hearing, strange tastes or smells, or a feeling of deja vu. Partial seizures may cause a brief loss of consciousness, changes in mood, and memory loss just before, during and after the seizure.

Ways to prevent seizures

Seizures can often be prevented with anticonvulsant medicines (also called anti-epileptic or anti-seizure medicines). Fatigue, or feeling very tired, can also increase your risk of having a seizure. Try to get enough sleep, and avoid daytime naps if they make sleeping at night difficult. Limiting or cutting down on alcohol may also help.

Ways to help someone having a seizure

• Remain calm and stay with the person while they are having a seizure. If they have one, refer to their Seizure Management Plan.
• Do not hold them down or put anything in their mouth.
• Protect the person from injury (e.g. move hazards, lower them to the floor if possible, loosen clothing, cushion their head and shoulders).
• Call 000 for an ambulance if it is the first seizure the person has had; if the person is injured; if there was food or fluid in the person’s mouth; if the seizure lasts longer than five minutes; or if you are unsure what to do.
• Time how long the seizure lasts so you can tell the paramedics.
• After the jerking stops, roll the person onto their side to keep their airway clear. This is particularly important if the person has vomited, is unconscious or has food or fluid in their mouth.
• Watch the person until they have recovered, or the ambulance arrives.
• If the seizure occurs while the person is in a wheelchair or car, support their head and leave them safely strapped in their seat until the seizure is over. Afterwards, remove the person from their seat, if possible. Roll them onto their side if there is food, fluid or vomit in their mouth.
• Talk to the person and explain what has occurred. In many cases, people are confused after a seizure.
• Allow the person to rest afterwards as most seizures are exhausting.
• For detailed information and an online tool for creating a Seizure Management Plan, contact Epilepsy Action Australia on 1300 37 45 37.

Anticonvulsant medicines

Many different types of anticonvulsant drugs are used to prevent seizures. You may need to have blood tests while you are taking anticonvulsants. This is to check whether the dose is effective and how your liver is coping with the medicine.

Side effects of anticonvulsant drugs vary, but they may include tiredness, gum problems, shakes (tremors), nausea, vomiting, weight changes, depression, irritability and aggression. If you are allergic to the medicine, you may get a rash. Tell your treatment team if you have any skin changes or other side effects. Your doctor can adjust the dose or try another anticonvulsant. Do not stop taking the medicine or change the dose without your doctor’s advice.

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