Further support for people with pleural mesothelioma
Mesothelioma can affect every aspect of your life, and create practical and financial issues. There are many sources of support and information to help you, your family and carers navigate all stages of the cancer experience.
Learn more about:
The availability of services may vary depending on where you live, and some services will be free but others might have a cost.
To find good sources of support and information, you can talk to the social worker or nurse at your hospital or treatment centre, or get in touch with Cancer Council 13 11 20.
New South Wales
|Asbestos Diseases Foundation of Australia (ADFA)||1800 006 196|
|Asbestos Diseases Research Institute (ADRI)||02 9767 9800|
|Asbestosis and Mesothelioma Association of Australia (AMAA)||1800 017 758|
|Asbestos Disease Support Society (ADSS)||1800 776 412|
|Asbestos Diseases Society of South Australia (ADSSA)||1800 157 540 or|
08 8241 7297
|Asbestos Victims Association of South Australia (AVA)||08 8212 6008 or|
|Asbestos Free Tasmania Foundation|
|Asbestos Council of Victoria/Gippsland Asbestos Related Diseases Support (ACV/GARDS)||03 5127 7744|
|Asbestos Diseases Society of Australia (ADSA)||1800 646 690|
|Reflections||1800 031 731|
You can find many useful resources online, but not all websites are reliable. Visit the websites below for good sources of support and information:
|Cancer Council Australia||cancer.org.au|
|Cancer Council Online Community||cancercouncil.com.au/OC|
|Cancer Council podcasts||cancercouncil.com.au/podcasts|
|Guides to Best Cancer Care||cancer.org.au/cancercareguides|
|Advance Care Planning Australia||advancecareplanning.org.au|
|Asbestos Safety and Eradication Agency||asbestossafety.gov.au|
|Australian Mesothelioma Registry||mesothelioma-australia.com|
|My Aged Care||myagedcare.gov.au|
|Palliative Care Australia||palliativecare.org.au|
|Patient travel assistance schemes||healthdirect.gov.au/travelling-to- your-healthcare-appointment|
|The Australian Asbestos Network||australianasbestosnetwork.org.au|
|Young Carers Network||youngcarers.net.au|
|American Cancer Society||cancer.org|
|Cancer Research UK||cancerresearchuk.org|
|Macmillan Cancer Support (UK)||macmillan.org.uk|
My family members don’t really understand what it’s like to have cancer thrown at you, but in my support group, I don’t feel like I have to explain.SAM
Dr Anthony Linton, Medical Oncologist, Concord Cancer Centre and Concord Repatriation General Hospital, NSW; Dr Naveed Alam, Thoracic Surgeon, St Vincent’s Hospital Melbourne and Monash Medical Centre, VIC; Donatella Arnoldo, Consumer; Polly Baldwin, 13 11 20 Consultant, Cancer Council SA; Dr Melvin (Wee Loong) Chin, Medical Oncologist, Sir Charles Gairdner Hospital and National Centre for Asbestos Related Diseases, WA; Prof Kwun Fong, Thoracic and Sleep Physician and Director, UQ Thoracic Research Centre, The Prince Charles Hospital, and Professor of Medicine, The University of Queensland, QLD; Vicki Hamilton OAM, Consumer and CEO, Asbestos Council of Victoria/GARDS Inc., VIC; Dr Susan Harden, Radiation Oncologist, Peter MacCallum Cancer Centre, VIC; Penny Jacomos, Social Worker, Asbestos Diseases Society of South Australia, SA; Prof Brian Le, Director, Parkville Integrated Palliative Care Service, The Royal Melbourne Hospital and Peter MacCallum Cancer Centre, VIC; Lung Cancer Support Nurses, Lung Foundation Australia; Jocelyn McLean, Mesothelioma Support Coordinator, Asbestos Diseases Research Institute, NSW; Prof David Morris, Peritonectomy Surgeon, St George Hospital and UNSW, NSW; Joanne Oates, Registered Occupational Therapist, Expert Witness in Dust Diseases, and Director, Evaluate, NSW; Chris Sheppard and Adam Barlow, RMB Lawyers.
View the Cancer Council NSW editorial policy.