Soft tissue sarcoma
If you’re affected by soft tissue sarcoma, you may have many questions about how it is diagnosed, treatment options, side effects and how to stay well. You can find trustworthy information about all aspects of your experience below.
- What type of soft tissue sarcoma do I have? Has it spread?
- Have you treated this type of sarcoma before?
- Have you discussed my case at a specialised sarcoma multidisciplinary team (MDT) meeting?
- Will I have treatment in a specialist sarcoma unit?
- What tests will I need to have?
- What treatment do you recommend for me?
- Are there any clinical trials I should join?
- Is it possible to have surgery? If so, what type?
- Will I need to have radiation therapy, chemotherapy or other treatments?
- How well do the suggested treatments work for this type of sarcoma?
- What are the possible risks and side effects of my treatment? How will they be managed?
- Are there any costs not covered by Medicare or private health insurance?
- How will we know if the treatment is working?
- Is my family at higher risk of soft tissue sarcoma? Should I have any genomic testing?
Need to talk?
A/Prof Richard Boyle, Orthopaedic Surgeon, Royal Prince Alfred Hospital and Sydney Children’s Hospital Network, NSW; Catherine Chapman, Adolescent and Sarcoma Cancer Specialist Nurse, Canberra Health Services, ACT; Belinda Fowlie, Bone Tumour Nurse Practitioner Candidate, SA Bone and Soft Tissue Tumour Unit, Flinders Medical Centre, SA; Leanne Goegan, Consumer; Jonathan Granek, Consumer; Prof David Gyorki, Surgeon and Director, Sarcoma Service at Peter MacCallum Cancer Centre, VIC; Prof Angela Hong, Radiation Oncologist, Chris O’Brien Lifehouse, Melanoma Institute Australia, GenesisCare and Clinical Professor, The University of Sydney, NSW; A/Prof Yeh Chen Lee, Medical Oncologist, Prince of Wales Hospital and UNSW, NSW; Caitriona Nienaber, 13 11 20 Consultant, Cancer Council WA.
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