Adenoid cystic carcinoma (ACC)

If you’re affected by adenoid cystic carcinoma (ACC), you may have many questions about how it is diagnosed, treatment options, side effects and how to stay well. You can find trustworthy information about all aspects of your experience below.

Adenoid Cystic Carcinoma (ACC) fact sheet
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  • How far has the cancer spread? What stage of cancer do I have?
  • Have you treated this type of cancer before? If so, how many times? Is there another doctor who has more experience treating this type of cancer?
  • What treatment do you recommend and why?
  • What are the possible risks and side effects of my treatment? How will these be managed?
  • How long will treatment take? Will I have to stay in hospital?
  • Is this treatment covered by Medicare/private insurance? Will there be extra expenses?
  • Will I have a lot of pain with the treatment? What will be done about this?
  • Will my face or neck have significant scarring or will I look different? What can be done to minimise this?
  • What kind of rehabilitation will be available to me afterwards?
  • Are there any complementary therapies that might help me?

If you are thinking of taking part in a clinical trial, here are some questions you could ask:

  • What are the possible benefits and risks to me?
  • What is being tested and why?
  • How many people will be involved in this trial?

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