Chronic lymphocytic leukaemia (CLL)
If you’re affected by chronic lymphocytic leukaemia (CLL), you may have many questions about how it is diagnosed, treatment options, side effects and how to stay well. You can find trustworthy information about all aspects of your experience below.
Chronic lymphocytic leukaemia (CLL) is a blood cancer that develops when the body makes too many abnormal white blood cells.
Find out about the tests for CLL, how it is diagnosed and staged, and who will provide your care.
People diagnosed with CLL often don’t need treatment straightaway, and some people never require treatment. If you need treatment, options usually include chemotherapy and targeted therapy.
Learn about follow-up care, what happens if the cancer returns, and how to look after your physical and mental health.
- What type of chronic leukaemia do I have?
- Are the latest tests and treatments for this type of leukaemia available in this hospital?
- Will a multidisciplinary team be involved in my care?
- Are there clinical guidelines for this type of leukaemia?
- What treatment do you recommend? What is the aim of the treatment?
- Are there other treatment choices for me? If not, why not?
- If I don’t have the treatment, what should I expect?
- How long do I have to make a decision?
- I’m thinking of getting a second opinion. Can you recommend anyone?
- How long will treatment take? Will I have to stay in hospital?
- Are there any out-of-pocket expenses not covered by Medicare or my private health cover? Can the cost be reduced if I can’t afford it?
- How will we know if the treatment is working?
- Are there any clinical trials or research studies I could join?
- What are the risks and possible side effects of each treatment?
- Can I work, drive and do my normal activities while having treatment?
- Will the treatment affect my sex life and fertility?
- Should I change my diet or physical activity during or after treatment?
- Are there any complementary therapies that might help me?
- How often will I need check-ups after treatment or while I am taking long-term TKIs?
- If the leukaemia returns, how will I know? What treatments could I have?