The Registers were set up by The Cancer Council NSW in 1990 to help families with hereditary cancer conditions. The Registers provide information and support to people affected by hereditary cancer, their at-risk family members, and their doctors.
The conditions covered by the Registers include:
- FAP (Familial Adenomatous Polyposis)
- HNPCC (Hereditary Non-Polyposis Colorectal Cancer)
- Peutz-Jeghers Syndrome
- Juvenile polyposis
- Other Polyposis syndromes (i.e. Hyperplastic, Cowden's Syndrome, Mixed Polyposis)
What do the Hereditary Cancer Registers do?
- The Registers aim to assist people from families with a high risk of hereditary cancer to understand and manage their risk.
- Joining the register can help to build a complete picture of the condition in a family.
- The Registers also help develop our knowledge about the incidence of hereditary cancer conditions in NSW and ACT and contributes to better information, services and support for patients and their families.
- People from high-risk families are encouraged to join the Registers. Registered members have the opportunity to take advantage of our information and screening expertise.
- Registration is voluntary: just complete a consent form with a doctor or genetic counsellor.
- The personal details provided to the Registers are confidential and are not discussed with any other person or organisation without permission.
More Information
Contact the Registers
The NSW & ACT Hereditary Cancer Registers were transferred to the Cancer Institute NSW in July 2006.
To contact the NSW & ACT Hereditary Cancer Registry call 1800 505 644 or email hcr@cancerinstitute.org.au
Hereditary Cancer Registers In Australia & NZ
NSW & ACT Hereditary Cancer Registry
(FAP, Polyposis Syndromes & HNPCC) |
Felicity Devitt
Cancer Institute NSW
Locked Bag 9014
Alexandria NSW 1435
Tel: (02) 02 8374 5798
Email: Felicity.Devitt@cancerinstitute.org.au
Web: www.cancerinstitute.org.au |
Queensland Familial Bowel Cancer Registry
(HNPCC, FAP, Polyposis Syndromes & High risk CRC)
Queensland state wide Genetics Service
|
Ngaire Knight, Vivianne Geldard
c/-Genetic Health Queensland
Royal Children's Hospital
Herston Road
Herston QLD 4029
Same address as above
Tel: (07) 3636 5117 (Ngaire)
Tel: (07) 3636 9228 (Vivianne)
Fax: (07) 3636 9164 (QFBCR)
Email:
ngaire_knight@health.qld.gov.au
vivianne_geldard@health.qld.gov.au
Tel: (07) 3636 1686
Fax: (07) 3636 1987
|
South Australia
(FAP, Polyposis syndromes and HNPCC and other familial cancers)
|
Kathryn Van Diemen
Familial Cancer Unit
Women's and Children's Hospital
72 King William Road
NORTH ADELAIDE SA 5006
Tel: (08) 8161 6995
Fax: (08) 8161 7984
Email: kathryn.vandiemen@cywhs.sa.gov.au
for Director: graeme.suthers@cywhs.sa.gov.au
|
Victorian Family Cancer Register
(FAP, HNPCC and Polyposis syndromes, Breast and Ovarian Cancer)
|
Toula McArdle, Kate Minkoff, Marita Black
The Cancer Council Victoria
1 Rathdowne Street Carlton VIC 3053
Tel:
Toula ( 03) 9635 5374
Kate (03) 9635 5414
Marita (03) 9635 5176
Fax: (03) 9635 5210
Email: VFCR@cancervic.org.au
Web: www.cancervic.org.au/cancer1/professionals/family_cancer |
Western Australia Familial Cancer Register
(FAP and Polyposis syndromes, Breast/Ovarian) |
Lyn Schofield
Genetic Services of W.A.
374 Bagot Road
Subiaco WA 6008
Tel: (08) 9340 1713 or (08) 9340 1603
Fax: (08) 9340 1725
Email: Lyn.schofield@health.wa.gov.au
|
Tasmanian Familial Bowel Cancer Registry
(FAP, HNPCC and Polyposis syndromes)
|
Iain Robertson
PO Box 1963
Launceston TAS 7250
Tel: (03) 6348 7006
Email: iainr@postoffice.utas.edu.au
|
New Zealand Familial Gastrointestinal Cancer Registry
(FAP, HNPCC and Polyposis syndromes) |
Julie Arnold , Susan Parry
Northern Regional Genetic Services
Auckland City Hospital
Building 30
PO Box 92024
Grafton, Auckland
Freephone: 0800 476 12
Tel: + 649 307 4949 ext 5436
Fax: + 649 307 4978
Email:
gensec@adhb.govt.nz
JulieA@adhb.govt.nz
Sparry@adhb.govt.nz
______________________
Heather Brunton
Southern Region
Gastroenterology Department
2 nd Floor, Riverside Block
Christchurch Hospital
PO Box 4710
Christchurch
Tel: + 64 3 3786148
Fax: +64 3 3640514
Email: Heather.Brunton@cdhb.govt.nz |
