Making treatment decisions
Sometimes it is difficult to decide on the type of treatment to have. You may feel that everything is happening too fast, or you might be anxious to get started. Check with your radiation oncologist how soon treatment should begin – often it won’t affect the success of the treatment to wait a while. Ask them to explain the options, and take as much time as you can before making a decision.
Learn more about:
- Knowing your options
- Recording the details
- Asking questions
- Considering a second opinion
- It’s your decision
- Should you join a clinical trial?
Understanding the disease, the available treatments, possible side effects and any extra costs can help you weigh up the options and make a well-informed decision. Check if the specialist is part of a multidisciplinary team and if the treatment centre is the most appropriate one for you – you may be able to have treatment closer to home, or it might be worth travelling to a centre that specialises in a particular treatment.
When your doctor first tells you that you have cancer, you may not remember everything you are told. Taking notes or recording the discussion can help. It is a good idea to have a family member or friend go with you to appointments to join in the discussion, write notes or simply listen.
If you are confused or want to check anything, it is important to ask your specialist questions. Try to prepare a list before appointments. If you have a lot of questions, you could talk to a cancer care coordinator or nurse.
You may want to get a second opinion from another specialist to confirm or clarify your specialist’s recommendations or reassure you that you have explored all of your options. Specialists are used to people doing this. Your GP or specialist can refer you to another specialist and send your initial results to that person. If you want to get a second opinion, it is best to do it before starting radiation therapy, so you don’t have to repeat the planning session. You might decide you would prefer to be treated by the second specialist or that you still want to be treated by your first doctor.
Adults have the right to accept or refuse any treatment that they are offered. For example, some people with advanced cancer choose treatment that has significant side effects even if it gives only a small benefit for a short period of time. Others decide to focus their treatment on quality of life. You may want to discuss your decision with the treatment team, GP, family and friends.
For more on this, see Cancer care and your rights
Your doctor or nurse may suggest you take part in a clinical trial. Doctors run clinical trials to test new or modified treatments and ways of diagnosing disease to see if they are better than current methods. For example, if you join a randomised trial for a new treatment, you will be chosen at random to receive either the best existing treatment or the modified new treatment. Over the years, trials have improved treatments and led to better outcomes for people diagnosed with cancer. You may find it helpful to talk to your specialist, clinical trials nurse or GP, or to get a second opinion. If you decide to take part in a clinical trial, you can withdraw at any time. For more information, visit Australian Cancer Trials or see Clinical trials and research.
Dr Madhavi Chilkuri, Radiation Oncologist, Townsville Cancer Centre, The Townsville Hospital, and Dean, RANZCR Faculty of Radiation Oncology, QLD; Polly Baldwin, 13 11 20 Consultant, Cancer Council SA; Patricia Hanley, Consumer; Prof Michael Hofman, Nuclear Medicine and Molecular Imaging Physician, Peter MacCallum Cancer Centre, VIC; Leanne Hoy, Cancer Nurse Consultant, GenesisCare, VIC; Sharon King, Accredited Practising Dietitian, TAS; Dr Yoo Young (Dominique) Lee, Radiation Oncology Consultant, Princess Alexandra Hospital, QLD; Dr Wendy Phillips, Senior Medical Physicist, Department of Radiation Oncology, Royal Adelaide Hospital, SA; Katrina Rech, Radiation Therapist and Quality Systems Manager, GenesisCare, SA. We also thank the health professionals, consumers and editorial teams who have worked on previous editions of this title.
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