The palliative care team

Your palliative care team will be made up of medical, nursing and allied health professionals who offer a range of services to assist you, your family and carers throughout your illness. Volunteers can also offer practical and emotional support, and may sometimes form an important part of your team.

Depending on your needs, your palliative care may be coordinated by your GP or a community nurse, or you may be referred to a specialist palliative care service. These services consist of a multidisciplinary team of doctors, nurses and allied health professionals specifically trained to look after people with complex health care issues. Your cancer care team will remain involved and will work with the palliative care providers at all stages of the illness.

You will have regular appointments or visits with the health professionals in your team so they can monitor your progress and adjust your care. The most common team members are listed in this chapter. You won’t necessarily see all these people – some roles overlap and assistance varies across Australia. Your GP, nurse or palliative care specialist can help you work out which services will benefit you most.

If you have cultural or religious beliefs about dying, death and bereavement, or particular family customs, let your palliative care team know. They can then incorporate these into your care plan where possible.

   — Linda


Learn about the people on your palliative care team, and their roles:


General practitioner (GP) or family doctor

  • continues to see you for day-to-day health care issues if you are being cared for at home (and may be able to make home visits)
  • liaises with your nurse and/or palliative care specialist about the coordination of your ongoing care
  • can refer you to a palliative care specialist for help with more complex needs
  • can organise your admission to hospital or a palliative care unit (hospice) if your circumstances change
  • offers support to you, your family and carers
  • can provide referrals for counselling, including bereavement counselling for family and carers, if necessary

Nurse

  • may be a community nurse, a specialist palliative care nurse or a palliative care nurse practitioner
  • may work for a hospital, community nursing service, residential aged care facility or specialist palliative care service
  • if you are being cared for at home, will visit you in your home and may provide after hours telephone support
  • coordinates other health professionals in the team and works out what care you need, including home nursing or personal care assistance
  • helps you manage pain and other symptoms with medicines and other treatments, and by suggesting practical strategies
  • a nurse practitioner can prescribe some medicines, order tests and make referrals to other health professionals

Palliative care specialist or physician

  • prescribes or recommends treatment for pain, nausea, constipation, anxiety, depression, breathlessness or any other symptoms you may have
  • usually provides care in a palliative care unit (hospice) or hospital (both for inpatients or people attending an outpatient clinic), but may also be able to visit you in your home or residential aged care facility
  • communicates with and advises the cancer specialist and your GP so your treatment is well coordinated
  • may refer you and your family to a grief counsellor, psychologist or other support person
  • assists with decision-making about care and treatment choices

Cancer specialist

  • may be a medical oncologist, surgeon, radiation oncologist or haematologist 
  • diagnoses the advanced cancer and may refer you to a specialist palliative care team 
  • continues to oversee treatment aimed at managing symptoms of the cancer (such as surgery, chemotherapy, immunotherapy, targeted therapy or radiation therapy) 
  • may manage some aspects of your palliative care

Counsellor or psychologist

  • trained in listening and counselling 
  • allows you to talk about any fears, worries or conflicting emotions 
  • helps you identify and talk about feelings of loss or grief 
  • assists you and your family to communicate and to explore relationship or emotional issues 
  • might suggest strategies for lessening the distress, anxiety or sadness you and others are feeling 
  • helps you to explore the issues you are facing so you can find more pleasure in your life 
  • may teach meditation or relaxation exercises to help ease physical and emotional pain 
  • provides bereavement care and support to your family and carers

Spiritual care practitioner

  • may also be known as a spiritual adviser or pastoral carer 
  • supports you and your family in talking about spiritual matters 
  • reflects with you about your life and, if you choose, may help you search for its meaning 
  • helps you to feel hopeful and develop ways to enjoy your life despite the illness 
  • may organise special prayer services and religious rituals for you, if appropriate 
  • connects you with other members of your faith
  • may discuss emotional issues, as many are trained counsellors

Social worker

  • assesses what sort of support you, your family and carers need, and identifies ways you can receive this support
  • provides information and referrals for legal matters, financial support, home respite care, meal services, parking schemes, personal alarms, laundry services and aged care services
  • helps you communicate with your family and health professionals, including about changes to your care goals
  • discusses ways of coping and how to emotionally support your children, grandchildren or other dependents
  • may provide counselling and emotional support, including working through feelings of loss and grief
  • in some cases, may help arrange care for dependents or pets

Physiotherapist

  • helps to keep you moving and functioning as well as you can
  • assists with pain relief techniques, such as positioning your body in a better way, using hot and cold packs, and stimulating certain nerves in your body
  • shows you how to exercise to reduce pain and stiffness and increase mobility and energy
  • uses manual techniques to help clear congestion from your lungs and teaches you breathing exercises to better manage breathlessness
  • may work with a massage therapist to relieve stiff and sore muscles or swelling, or a podiatrist to treat any foot conditions

Occupational therapist

  • identifies ways to help you manage the physical aspects of your daily activities, such as walking, bathing, and getting into and out of bed and chairs safely
  • advises you on physical aids to improve your mobility and maintain your independence, such as a walking frame or a device to help you put on your socks
  • organises equipment hire or modifications to your house for a safer, more accessible environment (e.g. hand rails, shower chair)
  • teaches carers and family members the best ways to move you or help you sit and stand
  • assists you to prioritise your daily activities and conserve your energy so that you can achieve the things that are important to you

Pharmacist

  • gives you access to prescription and over-the-counter medicines to take at home 
  • can organise your tablets and capsules into a blister pack (e.g. Webster-pak) that sets out all the doses that need to be taken throughout the week
  • provides information about how to safely take medicines and possible side effects or interactions with other drugs 
  • communicates with the prescribing doctor if necessary 
  • helps you manage symptoms so you can achieve the best possible quality of life 
  • assists you or your carer with keeping track of medicines, including the costs on the Pharmaceutical Benefits Scheme (PBS)

Dietitian

  • works out the best eating plan for you and your family 
  • helps you choose suitable food and nutritional supplements 
  • tries to resolve any digestive issues, such as poor appetite, nausea or constipation 
  • may work with a speech pathologist, who can assess and help you deal with problems swallowing food and drinks

Volunteer

  • offers friendship, support and companionship 
  • provides practical assistance, e.g. taking you shopping or to appointments, giving your carer a break, minding children, or doing basic jobs around the house 
  • can be most helpful if you give them specific tasks so that they don’t have to guess what you need 
  • roles will vary, depending on the organisation they volunteer for 
  • may be found through a palliative care service – these volunteers are screened, trained and supervised 
  • can also be found through your state or territory palliative care organisation
  • can be a friend, family member or neighbour – although you may feel embarrassed about asking for help, you will probably find that many people want to do something for you

Click on the icon below to download a PDF booklet on palliative care.


Printed copies are available for free - Call 13 11 20 to order

Instructions for downloading and reading EPUB files

Apple devices

The iBooks application must be installed on your Apple device before you can read the EPUB.
Different ways to download an EPUB file to your Apple device:

  • email EPUB files to yourself and transfer the attachment to iBooks.
  • copy EPUB files into DropBox (or a similar service) and use the DropBox app to send them to iBooks.
  • open EPUB files directly from Mobile Safari and open them in iBooks, where they are saved automatically by downloading the EPUB from the website.

Need more help? Visit: http://support.apple.com/kb/HT4059

Kobo

To download an EPUB file to your Kobo from a Windows computer:

  • download and save the EPUB directly onto your desktop.
  • connect your Kobo to your computer using the USB cable and tap “Connect” on your eReader.
  • select “Open folder to view files” to view the contents of your Kobo.
  • navigate to where you have stored your EPUB file in “Finder”, in documents or downloads, and drag and drop it into the Kobo window. You can now disconnect your Kobo to read the eBook.

To download an EPUB to your Kobo from a Mac:

  • download and save the EPUB directly onto your desktop.
  • connect your Kobo to your computer using the USB cable and tap “Connect” on your eReader.
  • open your “Finder” application.
  • select “Kobo eReader” from the listed devices to view the contents of your Kobo.
  • navigate to where you have stored your EPUB file in “Finder”, probably in documents or downloads, and drag and drop it into the Kobo window. You can now disconnect your Kobo to read the eBook.

Turn on your Kobo and your EPUB will be located in “eBooks”, while a PDF will be located in “Documents”.
Need more information? Visit: http://www.kobo.com/help/koboaura/response/?id=3784&type=3

Sony Reader

To download an EPUB file on your Sony Reader™:

  • ensure you have already installed the Reader™ Library for PC/Mac software
  • select the eBook you want from our website and click the link to download it.
  • connect the Reader™ to your computer.
  • open the Reader™ Library software and click “Library” in the left-hand pane and select the eBook to view it.

Need more help? Visit: https://au.readerstore.sony.com/apps_and_devices/

Amazon Kindle 2nd Generation devices

EPUB files can’t be read on the Amazon Kindle™. However, like most eReaders, Kindle™ 2nd Generation devices are able to display PDFs. We recommend that you download the PDF version of this booklet if you would like to read it on a Kindle™.
To transfer a PDF to your Kindle™ via USB cable from your computer or Mac:

  • download the PDF directly onto your computer.
  • connect the USB cable to your computer’s USB port, and the micro USB end of the cable to your Kindle™. Note: the Kindle™ won’t be available as a reading device while it is connected to your computer until it has been disconnected.
  • open the Kindle™ drive and several folders will appear inside. The “Documents” folder is where you will need to copy or drag the PDF to.
  • safely eject your Kindle™ from your computer and unplug the USB cable. Your content will appear on the Home Screen.

Kindle also provides a Kindle Personal Documents Service that allows users to send documents as an attachment directly to your eReader. For more information on this service, visit http://www.amazon.com/gp/help/customer/display.html/ref=help_search_1-1?ie=UTF8&nodeId=200767340&qid=1395967989&sr=1-1
For more information on accessing a PDF on your Kindle™, visit www.amazon.com/manageyourkindle, log in to your account and click on Personal Document Settings.
Need more help? Visit https://www.amazon.com/gp/help/customer/display.html?nodeId=200375630

Android and PC

You can also download and open eBooks on Android devices and PCs with appropriate apps or software installed. Suitable eReader apps for Android include Google Play Books, FBReader and Moon+ Reader. Suitable software for PCs include Calibre and Adobe Digital Editions.


This information was last reviewed in April 2019
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