Palliative Care – Needs assessment guidelines summary

Palliative Care Needs Assessment Guidelines Summary

The Palliative Care Needs Assessment Guidelines provide guidance to those caring for people with a life-limiting illness to ensure appropriate specialist care is offered. The guidelines have been developed under the auspices of the Australian Government Department of Health and Ageing to cover patient, caregiver and primary health care provider characteristics which influence the decision to provide specialist palliative care. This document is a general guide to be followed subject to the clinician’s judgement, complexity of patients’ ongoing needs and the patient’s preference for care. It is planned that the Guidelines will be generalised to the non-cancer palliative population after comprehensive evaluation.  Visit The University of Newcastle Australia website.

Surveys

Cancer-Related Knowledge & Practices: Recommended Survey Items

Prepared for: The Public Health Committee of The Cancer Council Australia

To date, a number of state-based surveys have explored cancer-related knowledge, attitudes and practices. Many of these surveys contain items which are very similar, but are not identical. Therefore, there is limited ability to look at these issues on a national basis, despite their apparent relevance to most, if not all, of the states.

If a small set of recommended items is included in state-based surveys as they arise, a national picture of common items of interest can be monitored over time. The number of proposed items in this recommended set has been minimised to facilitate their inclusion in all relevant surveys. These items are for inclusion at the discretion of any individual or group.

Please visit The University of Newcastle Australia website to access this information.

Supportive Care Needs Survey (SCNS)

The SCNS is a valid and reliable instrument for assessing cancer patients’ perceived need for help across the following five domains: psychological, health system & information, physical & daily living, patient care & support and sexuality.

The core survey is available as a 59-item long-form (SCNS-LF59) and 34-item short-form (SCNS-SF34). Supplementary modules for use in conjunction with the core SCNS-LF59 and SCNS-SF34 are available for breast cancer, melanoma, prostate cancer, colostomy, and access to health care and ancillary support services.

To obtain a free copy of the SCNS, please contact: CHeRP@newcastle.edu.au

Please visit The University of Newcastle Australia website to access this information.

SCNS Users Guide

The SCNS: A guide to administration, scoring and analysis describes the recommended procedures for administering, scoring and analysing the SCNS-LF59, SCNS-SF34 and associated supplementary modules.

The SCNS guide is now available for purchase at a cost of AUD $150 including postage and handling. This fee covers:

  • the guide with SAS programs;
  • unlimited use of the SCNS;
  • free supplements as they are developed;
  • currently available: reference values for long-term cancer survivors

Please visit The University of Newcastle Australia website to access this information.

Instructions for downloading and reading EPUB files

Apple devices

The iBooks application must be installed on your Apple device before you can read the EPUB.
Different ways to download an EPUB file to your Apple device:

  • email EPUB files to yourself and transfer the attachment to iBooks.
  • copy EPUB files into DropBox (or a similar service) and use the DropBox app to send them to iBooks.
  • open EPUB files directly from Mobile Safari and open them in iBooks, where they are saved automatically by downloading the EPUB from the website.

Need more help? Visit: http://support.apple.com/kb/HT4059

Kobo

To download an EPUB file to your Kobo from a Windows computer:

  • download and save the EPUB directly onto your desktop.
  • connect your Kobo to your computer using the USB cable and tap “Connect” on your eReader.
  • select “Open folder to view files” to view the contents of your Kobo.
  • navigate to where you have stored your EPUB file in “Finder”, in documents or downloads, and drag and drop it into the Kobo window. You can now disconnect your Kobo to read the eBook.

To download an EPUB to your Kobo from a Mac:

  • download and save the EPUB directly onto your desktop.
  • connect your Kobo to your computer using the USB cable and tap “Connect” on your eReader.
  • open your “Finder” application.
  • select “Kobo eReader” from the listed devices to view the contents of your Kobo.
  • navigate to where you have stored your EPUB file in “Finder”, probably in documents or downloads, and drag and drop it into the Kobo window. You can now disconnect your Kobo to read the eBook.

Turn on your Kobo and your EPUB will be located in “eBooks”, while a PDF will be located in “Documents”.
Need more information? Visit: http://www.kobo.com/help/koboaura/response/?id=3784&type=3

Sony Reader

To download an EPUB file on your Sony Reader™:

  • ensure you have already installed the Reader™ Library for PC/Mac software
  • select the eBook you want from our website and click the link to download it.
  • connect the Reader™ to your computer.
  • open the Reader™ Library software and click “Library” in the left-hand pane and select the eBook to view it.

Need more help? Visit: https://au.readerstore.sony.com/apps_and_devices/

Amazon Kindle 2nd Generation devices

EPUB files can’t be read on the Amazon Kindle™. However, like most eReaders, Kindle™ 2nd Generation devices are able to display PDFs. We recommend that you download the PDF version of this booklet if you would like to read it on a Kindle™.
To transfer a PDF to your Kindle™ via USB cable from your computer or Mac:

  • download the PDF directly onto your computer.
  • connect the USB cable to your computer’s USB port, and the micro USB end of the cable to your Kindle™. Note: the Kindle™ won’t be available as a reading device while it is connected to your computer until it has been disconnected.
  • open the Kindle™ drive and several folders will appear inside. The “Documents” folder is where you will need to copy or drag the PDF to.
  • safely eject your Kindle™ from your computer and unplug the USB cable. Your content will appear on the Home Screen.

Kindle also provides a Kindle Personal Documents Service that allows users to send documents as an attachment directly to your eReader. For more information on this service, visit http://www.amazon.com/gp/help/customer/display.html/ref=help_search_1-1?ie=UTF8&nodeId=200767340&qid=1395967989&sr=1-1
For more information on accessing a PDF on your Kindle™, visit www.amazon.com/manageyourkindle, log in to your account and click on Personal Document Settings.
Need more help? Visit https://www.amazon.com/gp/help/customer/display.html?nodeId=200375630